One Year of Poison...

Wow, it's hard to believe that today marks one year of being on the POISON.   All of this medicine is poison, but seriously, this stupid Tamoxifen has changed my life.  I know that I should be appreciative for the medicine because it has helped shrink Dezzie, but at the same time it is the reason I have so many issues.  It's so frustrating because I really didn't have too many problems until I started taking this medicine.  All of my issues have been caused from it.  Ovarian cysts, endometriosis, hot flashes, etc…. Then side effects develop and another medicine is thrown at me to take because of those side effects.  I am now up to taking 16, yes SIXTEEN, different medicines.  Ridiculous!  I always think of older people taking lots of medicine, not a 26 year old.  I'm just over taking all of this medicine.  I dread taking it every night because almost instantly after taking it, I'm nauseous.  But I have noticed if I forget to take a dosage, that later that night and the next day the hot flashes are HORRENDOUS! It's a lose/lose situation.  




It's hard not to think back on everything that has happened in this last year.  I remember going to my first appointment at City of Hope and crying happy tears because it was a much better experience than at Cedars.  We took the wrong turn going to the hospital and found a Sonic near by so we had to go to Sonic after my appointment to celebrate.  Now Sonic has turned into my "Good Patient Reward" and makes me look forward to going to the doctors.  But, it's just crazy how much my life has changed in the past year from being on this poison.  



I've had 2 sessions of acupuncture.  I actually fell asleep during my last session, which really says something about it because it is hard for me to relax.  I haven't noticed any relief with pain, hot flashes, or nausea, but shoot if it relaxes me and I'm able to sleep a little bit, I will take that!  She is on vacation this week so unfortunately didn't have it this week.  Wednesday can't come soon enough! (Partly because it's my next acupuncture appointment and it is also my next day off….) 

Luis and I at Santa Monica Beach 

Last week Luis and I had Friday off together, which hasn't happened in a looong time.  With him in school full time and working full time, he rarely has a day off.  It was such a good day!  We went to breakfast, went to Santa Monica Beach, and to Third Street Promenade and walked around.  It was hard for me to go to the beach completely covered up, but was thankful that at least got to go.  The beach is definitely my happy place.  






I will be traveling to Philadelphia in September for the DTRF Annual Research Symposium and Running for Answers 5k.  Please consider making a donation to "Team Kayla" to help find a cure for these stupid Desmoids so that others don't have to suffer from them.  Unfortunately since they're so rare, the only money raised for research is from what we fundraise. If you can join Team Kayla in Philly, that would be great too!  For info on the weekend, click here.