NOT HEREDITARY!! and Next Step....

Thank you Auntie Jill, this is
just what I needed!

It's been a crazy time since my last post! Nothing like having anesthesia 2 times within 12 days; I'm becoming a pro at many of these hospital things. I had my colonoscopy last Tuesday and received the news that everything was clear! So... Dezzie is NOT hereditary! As much as that would have made all my other decisions I needed to make easier, I'm ecstatic that it is not! I wouldn't wish any of this on anyone to have to go through! 

I have been wracking my brain trying to figure out what going to do.  It's especially hard when I'm very indecisive when it comes to making decisions.  I've been trying to make a pros and cons list and reaching out for advice from others to try to make a decision.
  

Welllll, I've finally made a decision.  After all of my pain coming back and still being in lots of pain, I decided to have a total hysterectomy.  My oncologist consulted with my fertilization specialist and they decided it wouldn't be a good idea to freeze my eggs either.  I can't afford to have all of that estrogen injected into me.  My health is the most important thing and I would be taking some big risks with the injections.  That made me feel better with my decision knowing that we are at least on the same page.   

I will be having a total hysterectomy August 16.  They will remove my ovaries, uterus, cervix, fallopian tubes, and also scrape the lining to be sure that they have removed all of the endometriosis.  I will be in the hospital 2-5 days.  The nice thing will be that I will not be receiving the Depot Lupron shot anymore after the hysterectomy.  It has definitely kicked in and I have been having HORRENDOUS hot flashes!  I received another of the shot today, so it will be in my system for another month and then will hopefully not be as bad.  I'm just so fed up with all of this.  I'm sick of being in so much pain.  I'm a wreck.  I just would have never expected to be 25 years old and have to go through all of this. 

**Please consider making a donation on my behalf for the Desmoid Tumor Research Foundation. A cure needs to be found!  I have faith that one will be found, just hope its SOONER rather than LATER!  

https://www.dtrf.org/index.php/donate/donate.html

When make a donation, write
"Bracelet" in the "Additional"
Box - $2

I just want to do a quick shout out to Luis for putting up with me through all of this.  I know I can get moody at times because I'm so frustrated but thank you for taking care of me and chauffeuring me around.  Also, thank you to my stepsister Kathy and her family.  I would be lost without you.