Thursday, December 19, 2013

More Thinking To Do...

Well, I had my 6 month CT scan and saw oncologist today.  Unfortunately, the day didn't go as well as I was hoping for.  Dezzie has shrunk a little bit. It was 66x59 in the last scan and now it's 64x52. But it's still really hard. He said that could remove it now. But it's my decision. I have 3 choices: stay on tamoxifen, start chemo, or have surgery. They're going to present it to the tumor board again with the updated tests and see what they say. I will see both my oncologists January 2 to discuss the next step. I have lots of thinking to do. He was totally against Nexavar (the oral chemo which is what I was really wanting). He wants IV chemo. It would be done every 3rd week for 6 months and then have another scan and then see. I'm not sure I want to have surgery yet cuz there's still 30% chance of needing a bowel transplant. That's still a high risk. Not sure what to do.

Stay on Tamoxifen and be miserable 24/7?  Or start chemo?  The chemo would be every 3 weeks.  The week I got it, I would feel shitty, then feel good for 2 weeks.  Dunno what to do.  So many pros/cons to everything.

I am so sick of making decisions.  Can someone please just make the decision for me.  

I'm just so blah right now.  I can't even think right now.  I will do another update later after I have a chance to gather my thoughts some.  

1 comment:

  1. I found your blog and wanted to tell you to stay strong. It's not easy to go through something so rare with no definite answers. I began my journey back in 2003 and just recently started blogging about it versus journaling. Here is a link to my blog if you are interested. http://mydesmoidstory.blogspot.com/?m=1

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