I am so fed up. I'm just over it all. I try to stay positive, but I'm really struggling with that right now.
Last week on Tuesday (1/14) I saw my gynecological oncologist for a check up from surgery. I told him that I still have ripping pains and the pain in my lower pelvic. I am really nervous that the endometriosis is coming back. They said there was a very small chance that it could come back. It wouldn't surprise me because that would be my luck that it would come back. I haven't had good luck with anything else, so it wouldn't surprise me. He told me that he wanted to keep an eye on it. He scheduled me for another appointment in 3 months, after my next CT. But he said if my pain got worse to call and get in sooner.
Well, never fails, 2 days later I get horrible pain. I woke up Thursday (1/16) and couldn't believe how much pain I was in. It was a different pain. More like a stabbing pain. It was on the left side right above my incision. It was so bad that I couldn't bend down or stand up straight. It was even so intense that I had to leave work early and went home and took pain pills. I hate taking pain pills, I only take them if I'm in lots of pain. I went into work late Friday and took it easy the whole weekend. I felt really good on Sunday. But then Monday (1/20) I was at work and all of a sudden at about 2 p.m., I got these horrible pains again. Out of nowhere. The only thing I could think of was because I was busy at work so I was walking around fast and bending down a lot.
I ended up calling my doctor Monday afternoon because I knew that this wasn't normal. I shouldn't be having pains this bad this far post-op. It's been 23 weeks since my surgery. Unfortunately, I never got a call back Monday. So I tried again Tuesday morning. The first person I talked to wanted me to go to the ETC (City of Hope's version of ER). I told them I did not want to go there because when I went there before nothing was accomplished. I wanted to see when I could see the doctor next. His P.A. ended up calling me back and first she brought up me going to the ETC and I turned her down as well. She went and talked to my doctor and they were able to get me in Tuesday night.
Just my luck, just like every other problem I have had. They do not know what is wrong with me. They think it is something muscular/skeletal. Everything about me has been puzzling to my doctors. He said that if I had increased the tamoxifen, he would connect it with that. But I have DECREASED the tamoxifen, so I should be feeling better by now.
So I will be seeing another doctor to see if can get some answers. Ughhhh so frustrating.
Tillllll then, I'll just veg out and take my pain pills...
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